SHIP-NP

The Structured History Protocol for Neuropsychology (SHiP-NP©) is an evidence-based, structured clinical protocol for informing neuropsychological exams, using tools consistent with NIH Common Data Elements (CDEs). Using our secure, online forms completion portal, clinical neuropsychology centers can collect relevant patient history information for both clinical and research endeavors. The development and management of the SHiP-NP© has been supported by grant funding from the NAN Clinical Research Grants Program and the National Institute of Mental Health (R01MH118514). Access to the SHiP-NP© portal may be provided free of charge to clinical NP providers and researchers nationwide.



OVERVIEW

The SHiP-NP© was created to promote standardization and facilitate data harmonization within the field of clinical neuropsychology. It uses a collection of existing NIH CDE instruments to securely gather relevant patient information related to social and demographic background, medical and psychological diagnoses, current symptoms, and functional abilities. Real-time scoring procedures are employed to formulate auto-populated outputs of aggregated results for each patient. These results may be reviewed by clinicians to inform neurobehavioral exams and facilitate patient care. Provided data can also be simultaneously de-identified and outflowed into a database repository (with appropriate IRB approval) for ongoing clinical data collection, with the aim of promoting the integration of practice with research.



LEARN MORE

Click on the provided links below to read more about the existing NIH CDE initiatives that make up each domain of the SHiP-NP© and download free, printable versions of CDE questionnaires.

Consensus Measures for Phenotypes and eXposures (PhenX)

CDEs included in SHiP-NP©: Demographic variables including age, sex, gender identity, race, ethnicity, marital status, educational attainment (modified), annual family income, child-reported parental educational attainment, handedness, generational status, language fluency and proficiency

NINDS Common Data Elements (NINDS CDEs)

CDEs included in SHiP-NP©: Demographic variables including age, sex, gender identity, race, ethnicity, marital status, educational attainment (modified), annual family income, child-reported parental educational attainment, handedness, generational status, language fluency and proficiency

APA DSM Level 1 and 2 Cross-Cutting Symptom Measures, including Patient Reported Outcomes Measurement Information System (PROMIS) short-forms for depression, anxiety, anger and sleep disturbance

Quality of Life Outcomes in Neurological Disorders (Neuro-QOL)

  • CDEs included in SHiP-NP©: Cognition, Emotional and Behavioral Dyscontrol, Sleep Disturbance, Lower Extremity Function – Mobility, Upper Extremity Function - Fine Motor Abilities, Satisfaction with Social Roles and Activities, Positive Affect and Well-Being, and Stigma

World Health Organization Disability Assessment Schedule 2.0 (WHO-DAS 2.0)

 

NEW USERS

Please register with the NNN if you would like to be added to our distribution list and receive updates about our ongoing projects. If you are interested in learning more about using the SHiP-NP© for your clinical or research endeavors, please contact Lucia Cavanagh(lcavanagh@mednet.ucla.edu).

GRANT# R01MH118514