LEARN MORE
Click on the links provided below to read more about the existing NIH CDE initiatives that make up each domain of the
SHiP-NP© and download free, printable versions of CDE questionnaires.
Consensus Measures for Phenotypes and eXposures (PhenX)
CDEs included in SHiP-NP©: Demographic variables including age, sex, gender identity, race, ethnicity, marital status, educational attainment (modified), annual family income, child-reported parental educational attainment, handedness, generational status, language fluency and proficiency
NINDS Common Data Elements (NINDS CDEs)
CDEs included in SHiP-NP©: Demographic variables including age, sex, gender identity, race, ethnicity, marital status, educational attainment (modified), annual family income, child-reported parental educational attainment, handedness, generational status, language fluency and proficiency
APA DSM Level 1 and 2 Cross-Cutting Symptom Measures, including Patient Reported Outcomes Measurement Information System (PROMIS) short-forms for depression, anxiety, anger and sleep disturbance
Quality of Life Outcomes in Neurological Disorders (Neuro-QOL)
- CDEs included in SHiP-NP©: Cognition, Emotional and Behavioral Dyscontrol, Sleep Disturbance, Lower Extremity Function – Mobility, Upper Extremity Function - Fine Motor Abilities, Satisfaction with Social Roles and Activities, Positive Affect and Well-Being, and Stigma
World Health Organization Disability Assessment Schedule 2.0 (WHO-DAS 2.0)
NEW USERS
If you are interested in gaining access to the SHiP-NP©, please complete the form below. After the form is submitted,
your request will be reviewed. Once it is approved, you will receive an email that contains login information for access to the SHiP-NP© system. If you do not receive a reply within 7 business days, please email the study coordinator, Kristen Emanuel (kenriquez@mednet.ucla.edu).
OTHER SITES THAT HAVE REGISTERED
Albizu University
ANR
Baptist Health Jacksonville
Barrow Neurological Institute
Center for Cognition and Compassion
Emory University
Golden State Neuropsychology
Mayo Clinic
Medical College of Wisconsin
Montefiore
Northern Arizona TeleNeuropsychology
Ochsner Health
Ohio State University
Ohio State University Wexner Medical Center
One Behavioral Health
Penn State Health
Rocky Mountain MS Clinic
Saint Anthony's Hospital
The Children's Hospital of Philadelphia
The Ottawa Hospital
Toowoomba Psychological Services
University Health Network
University of California, Los Angeles
University of Florida, Gainesville
University of Oklahoma Health Sciences Center
Veterans Hospital Long Beach
West Virginia University